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In a note from Drew Warner, he said, "When I got to Centennial HS, on my second day as a freshman, I was so intimidated by high school. "Ang" must have noticed, and she came up with a big smile and started asking how I was doing. I never will forget how comforting that was." A very special thank you goes out to Drew for his kind words and generous donation to the Angela Anderson Memorial Research Fund for SJS/TEN at Vanderbilt University Medical Center.. You too can now donate directly to VUMC at the following link: webapp.mis.vanderbilt.edu/vumc-giving/landing…https://webapp.mis.vanderbilt.edu/vumc-giving/landing…
I received the following message from the mother of a child that contracted Stevens-Johnson Syndrome
Good afternoon! My name is Cindy and I live in St. Joseph. I remember hearing Angela's story shortly after her passing. Three weeks ago my 15 year old daughter woke up with blisters on her lips that progressed to her mouth and throat. She also had red, blood shot looking eyes and I immediately thought that that was simply pink eye. I had no explanation for the blisters, however. I took her to Christie Clinic Convenient Care where the dr. immediately mentioned SJS and said that we needed to go to the ER. At the ER, several tests were run and it was decided that she had atypical SJS due to an allergy to amoxicillin. The following day, one more blood test was ordered to test for mycoplasmosis. It came back positive, and as it turns out, SJS is associated with this bacterial infection, especially in teens and young adults. My daughter has since recovered from the blisters in her mouth and throat and on her lips. She lost 20 pounds through her illness and we are still working on putting that weight back on her and getting her energy back. I firmly believe because of Angela's story, my daughter received a quick diagnosis. For that, I will be eternally grateful. My daughter will be running this weekend at the high school state track meet with Angela on her mind. Thank you for what you are doing to bring information about SJS and TEN to the public. I would be very interested in helping you bring awareness to the public. Please let me know if and how I can become involved.
Sincerely,
Cindy
PLEASE CONTINUE TO SPREAD THE WORD ABOUT STEVENS-JOHNSON SYNDROME TO SAVE MORE LIVES.
To our family and many friends who have donated to SJS research, Thank you, we love you. If you have not donated or feel led to donate again, Vanderbilt University Medical Center has not received any donations to the Angela Anderson Memorial Research Fund for Stevens-Johnson Syndrome / Toxic Epidermal Necrolysis for several weeks now. If you would like to donate you can do so at: webapp.mis.vanderbilt.edu/vumc-giving/landing?appealCode=M173H or you can click on the blue Donate button at the top of the page.
Vanderbilt University Medical Center Giving - Recipient Selection - Vanderbilt Health Nashville, TN
webapp.mis.vanderbilt.edu
Vanderbilt Health is a website for patients and visitors to Vanderbilt University Medical Center in Nashville, TN. Vanderbilt is nationally known for patient care, research, and biomedical education. ...
This is the speech I gave at the Genomic Medicine Meeting in Silver Spring, Maryland on May 2, 2017. I was invited by Duke University's School of Medicine's Center for Applied Genomics and Precision Medicine and The National Institute of Health to tell "Angela's Story" It was not an easy story to tell but it puts a human face on the research these doctors do and shows them that their pie charts and bar graphs and statistics are real people with real names and real families. My goal was and is to inspire them to work harder to conquer Stevens Johnson Syndrome, adverse drug reactions and other genetic diseases.
GM10: Angela's Story - Why Pharmacogenetics Matters - Paul Anderson
May 2-3, 2017 - Genomic Medicine X: Pharmacogenomics. More: www.genome.gov/27568408
EDUCATE BEFORE YOU MEDICATE ! ! !
This Woman's Skin "Melted Off" After She Was Given the Wrong Dosage of an Antidepressant
goodhousekeeping.com
Warning: Some people may find these images disturbing.
Know the symptoms.
Stevens-Johnson Syndrome (SJS)
webmd.com
Stevens-Johnson syndrome is a rare, very serious disease that makes skin blister and peel off. You'll need special care to prevent long-term damage to your skin and other organs.