Paul’s Speech at the Genomic Medicine Meeting in Silver Spring, Maryland

May 24, 2017 | 1 Comment

This is the speech I gave at the Genomic Medicine Meeting in Silver Spring, Maryland on May 2, 2017. I was invited by Duke University’s School of Medicine’s Center for Applied Genomics and Precision Medicine and The National Institute of Health to tell “Angela’s Story” It was not an easy story to tell but it … Read more

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NIH probes the genome to understand severe drug reaction

Mar 29, 2017 | 0 Comments

By Sheena Faherty, Ph.D. Science Writer, NHGRI Angela Anderson, a 22-year-old woman, fell victim to the fatal genetic condition, Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis, or SJS/TEN. Photo credit: Paul and Wanpen Anderson. “Angela was unique. She was a trendsetter … one in a million. The disease that took her was one in a million. Even in … Read more

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Paul’s speech to the International SJS/TEN Conference

Mar 18, 2017 | 0 Comments
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Making A Difference

Mar 17, 2017 | 0 Comments

Shortly after the article was published in the News Gazette, the reporter, Tom Kacich, received the following email: Hello Tom, I’m hoping you can help me. My name is Carrie Victor. On 12/20/2016 I was diagnosed with toxic epidermal necrolysis. Fortunately I lived to tell. Through this experience I became aware of the tragic story … Read more

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Grieving family trying to cure disease

Jan 5, 2017 | 0 Comments

CHAMPAIGN — A family is trying to raise money to find a cure for a condition that killed their youngest. It was the Anderson’s first Christmas without their youngest daughter Angela. She contracted a rare disease that killed her almost a year ago. Now, her family is doing what they can to prevent another family … Read more

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My Eulogy at Angela’s Funeral

Jan 5, 2017 | 0 Comments

Angela was unique. She was a trendsetter. Everybody says she was “cool”, but not only that, she made people around her feel cool. She had a way of making everyone feel welcome around her. People that didn’t “fit in” felt like they fit in when they were around her. Friends told me, “She was the … Read more

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Angela’s Final Days (Updated)

Jan 5, 2017 | 0 Comments

On December 23, Angela had plans to go out with her friends but cancelled because she had a fever and didn’t feel good.  She took ibuprofen for the fever and went to bed. On Christmas Eve Angela texted her mother, Wanpen at 2:38 pm showing a picture of her eye infection and complaining of pain.  … Read more

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WCIA Reports

Dec 29, 2016 | 0 Comments
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Benefit to raise awareness of deadly reaction to medication

Dec 29, 2016 | 0 Comments

Benefit to raise awareness of deadly reaction to medication By Luke Ray | lray@wcia.com Published 02/22 2016 11:48AM Updated 02/22 2016 11:48AM URBANA, Ill. URBANA — A brother is raising awareness about the rare skin condition which claimed his younger sister’s life. 22-year old Angela Anderson died in December from Stevens-Johnson Syndrome. Sunday, her family … Read more

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Daughter’s rare adverse drug reaction inspires family’s donation

Dec 29, 2016 | 0 Comments

Daughter’s rare adverse drug reaction inspires family’s donation by Bill Snyder | Wednesday, Dec. 21, 2016, 3:51 PM Last year Paul and Wanpen Anderson of Champaign, Illinois, were preparing to celebrate the Christmas holidays with their two children when their 22-year-old daughter, Angela, developed a rare adverse drug reaction called SJS/TEN. “It started with an … Read more

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