Update on Progress in SJS/TEN Research 2016/2017– Phillips Lab – Vanderbilt University Medical Center (VUMC)

Dec 22, 2017 | 0 Comments

The mission of the SJS/TEN research program at VUMC is to 1) improve preventive efforts and facilitate translation of genetic screening into the clinical and pre-clinical setting to prevent SJS/TEN through excluding patients at risk from high risk drugs and facilitating the development of safer drugs less likely to cause SJS/TEN. 2) Identify biomarkers associated … Read more

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Paul’s Speech at the Genomic Medicine Meeting in Silver Spring, Maryland

May 24, 2017 | 2 Comments

This is the speech I gave at the Genomic Medicine Meeting in Silver Spring, Maryland on May 2, 2017. I was invited by Duke University’s School of Medicine’s Center for Applied Genomics and Precision Medicine and The National Institute of Health to tell “Angela’s Story” It was not an easy story to tell but it … Read more

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NIH probes the genome to understand severe drug reaction

Mar 29, 2017 | 4 Comments

By Sheena Faherty, Ph.D. Science Writer, NHGRI Angela Anderson, a 22-year-old woman, fell victim to the fatal genetic condition, Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis, or SJS/TEN. Photo credit: Paul and Wanpen Anderson. “Angela was unique. She was a trendsetter … one in a million. The disease that took her was one in a million. Even in … Read more

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Paul’s speech to the International SJS/TEN Conference

Mar 18, 2017 | 0 Comments
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Making A Difference

Mar 17, 2017 | 0 Comments

Shortly after the article was published in the News Gazette, the reporter, Tom Kacich, received the following email: Hello Tom, I’m hoping you can help me. My name is Carrie Victor. On 12/20/2016 I was diagnosed with toxic epidermal necrolysis. Fortunately I lived to tell. Through this experience I became aware of the tragic story … Read more

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Grieving family trying to cure disease

Jan 5, 2017 | 0 Comments

CHAMPAIGN — A family is trying to raise money to find a cure for a condition that killed their youngest. It was the Anderson’s first Christmas without their youngest daughter Angela. She contracted a rare disease that killed her almost a year ago. Now, her family is doing what they can to prevent another family … Read more

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My Eulogy at Angela’s Funeral

Jan 5, 2017 | 0 Comments

Angela was unique. She was a trendsetter. Everybody says she was “cool”, but not only that, she made people around her feel cool. She had a way of making everyone feel welcome around her. People that didn’t “fit in” felt like they fit in when they were around her. Friends told me, “She was the … Read more

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Angela’s Final Days (Updated)

Jan 5, 2017 | 0 Comments

On December 23, Angela had plans to go out with her friends but cancelled because she had a fever and didn’t feel good.  She took ibuprofen for the fever and went to bed. On Christmas Eve Angela texted her mother, Wanpen at 2:38 pm showing a picture of her eye infection and complaining of pain.  … Read more

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WCIA Reports

Dec 29, 2016 | 0 Comments
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Benefit to raise awareness of deadly reaction to medication

Dec 29, 2016 | 0 Comments

Benefit to raise awareness of deadly reaction to medication By Luke Ray | lray@wcia.com Published 02/22 2016 11:48AM Updated 02/22 2016 11:48AM URBANA, Ill. URBANA — A brother is raising awareness about the rare skin condition which claimed his younger sister’s life. 22-year old Angela Anderson died in December from Stevens-Johnson Syndrome. Sunday, her family … Read more

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