This is the speech I gave at the Genomic Medicine Meeting in Silver Spring, Maryland on May 2, 2017. I was invited by Duke University’s School of Medicine’s Center for Applied Genomics and Precision Medicine and The National Institute of Health to tell “Angela’s Story” It was not an easy story to tell but it … Read more

By Sheena Faherty, Ph.D. Science Writer, NHGRI Angela Anderson, a 22-year-old woman, fell victim to the fatal genetic condition, Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis, or SJS/TEN. Photo credit: Paul and Wanpen Anderson. “Angela was unique. She was a trendsetter … one in a million. The disease that took her was one in a million. Even in … Read more

Shortly after the article was published in the News Gazette, the reporter, Tom Kacich, received the following email: Hello Tom, I’m hoping you can help me. My name is Carrie Victor. On 12/20/2016 I was diagnosed with toxic epidermal necrolysis. Fortunately I lived to tell. Through this experience I became aware of the tragic story … Read more

CHAMPAIGN — A family is trying to raise money to find a cure for a condition that killed their youngest. It was the Anderson’s first Christmas without their youngest daughter Angela. She contracted a rare disease that killed her almost a year ago. Now, her family is doing what they can to prevent another family … Read more

Angela was unique. She was a trendsetter. Everybody says she was “cool”, but not only that, she made people around her feel cool. She had a way of making everyone feel welcome around her. People that didn’t “fit in” felt like they fit in when they were around her. Friends told me, “She was the … Read more

On December 23, Angela had plans to go out with her friends but cancelled because she had a fever and didn’t feel good.  She took ibuprofen for the fever and went to bed. On Christmas Eve Angela texted her mother, Wanpen at 2:38 pm showing a picture of her eye infection and complaining of pain.  … Read more

Benefit to raise awareness of deadly reaction to medication By Luke Ray | lray@wcia.com Published 02/22 2016 11:48AM Updated 02/22 2016 11:48AM URBANA, Ill. URBANA — A brother is raising awareness about the rare skin condition which claimed his younger sister’s life. 22-year old Angela Anderson died in December from Stevens-Johnson Syndrome. Sunday, her family … Read more

Daughter’s rare adverse drug reaction inspires family’s donation by Bill Snyder | Wednesday, Dec. 21, 2016, 3:51 PM Last year Paul and Wanpen Anderson of Champaign, Illinois, were preparing to celebrate the Christmas holidays with their two children when their 22-year-old daughter, Angela, developed a rare adverse drug reaction called SJS/TEN. “It started with an … Read more